My grandson had his proceedures done today. Thank "God" he did very well and is doing well. He got his "Port" in which use to be called a stunt. They did the hearing wave test, which showed mod. hearing loss in both ears. He will need hearing aids and later implants. No thinking of his throat thank you. That was good news. On Monday he will start his Enzyme treatments once a week. I just do not understand why a 3 year old should have to go through so much. He is our little trooper, what a little fighter he is. I love him so so much. I feel like all my hope is gone. I feel like I've lost my faith. I'm trying, really I am. God you know we had no problem walking away from our belongings..they were just things. But I can not help missing my oldest daughter and my friends. They were our support. I have lost my dignity, my strength to carry on. You know God I have always been the one who was able to figure out our problems with your help and fix everything; somehow someway. Now no matter what I do, or how hard I pray and try nothing works out for us. I'm not just feeling sorry for myself and family god. Like I said we had no problems leaving our life behind so our grandson could get the medical help he needed. But did I have to get sick too. Now we can not pay our bills, we a going to be sued because we can't pay on a loan, we have to file BK. And to top it off now the health dept knocks on our door to tell us our septic has been capped long ago and because it is a REPO no one had to tell us, so now we have to find the money to ""pump and hall order"" then because there is no room-land we have to hook up to the city sewer which will cost about $8000.00 once we are all said and done. If you can't pay your bills and put food on the table how do you pay for a BK, a pump and hall, and a city sewer hook up. Please just help us, please give us a break....Please.
Amen
Jerilyn

Well here I am again. My grandson has been diagnosed with Hunter Syndrome. He has 3 Proceedures on the 25th of this month. He will start Enzyme treatment soon. I've really been trying to understand, forgive, and let go more. I pray with all my heart and soul for help. But more bad keeps coming for us. I'm trying to let it go, but it feels so bad. I cry and then I pray and hope all over again. I feel like nobody hears me or there is something wrong with me that i can't hear or see the answers or feel the comfort. Please GOD let things get better. Bless us, protect us, comfort us. I believe some how you will save us.
Amen
Jerilyn

As we approach this new year a pray things will improve for us. It has been a very hard year. I pray my grandson who is only 3 will prove them all wrong and be able to beat the odds of Hunters or Hurlers Disease. (still waiting to find out which one it is) He will have to go through Enzeme treatment and bone morrow/stem cell treatment. I pray it will work. I also pray that he is so smart that he doesn't become metally retarted, blind, fully deaf, and his little body will not tighten-up any more so he will not be in anymore pain and he will still be able to walk and play. I'm sick as well with Diabetes, Lupus, Burgers-Vascular Disease, and now Tremors and Siezures. God if you have to take one of us please take me. Let this little boy grow up and change things for the better. What is father and his fathers side have done in the past can be broken by letting this little boy live and overcome his illness and be a great person. My daughter and our family have given love, encuragement, and the proper foundation to him so he could become a wonderful person. He is loving, has a great sense of humor, smart, and caring. Please bless him and keep him strong and able to bet the odds and live. He is our whole world and if my daughter has to lose one of us let it be me not him. I love my family so very much and pray that our finances will improve and we wont lose our home, they wont turn the lights off and we will have food on the table and gas money. Please let me win my Social Security hearing.
Thank you for listening and Amen.
Jerilyn

We need your help please. It has been over a year and things have not improved financially. I've gotten sicker which mean more medical bills we can not afford to pay. Bill collectors calling. I've always worked hard and paid my way. I maybe weak for a moment but then I pray and believe you will come. You will come and show me and help me and my family. My daughter needs your help too. She needs a good job. She has worked hard to get her MA, but no one hires MA's here. She is willing to work hard. It just has to be a place they are not cruel to the patience and fair to the employees so they are not in danger. Thank you.

We have been going through so much in the last 2 years. I believe it is for a reason which we may not understand yet. Please let us move forward. Let our family find happiness. We lost all posessions but gained a stronger bond between us, let things be right and let us rebuild. We have let go and trust in the Lord to lead us. We know you saved my Grandson's life and we got the medical treatments he needed. We know you lead us here so I could also get medical help too. I also know my daughter and grandson are safe and out of harms way from others. Please let us get back on our feet, pay our bills, Let my Social Security be approved. I need to feel like I'm able to help to support us too and take some of the burden. We know family is important, we always did! But Money is needed to pay bills, keep a roof over our heads, and food in the belly. We have learned posessions are not so important. I knew this but it is very clear. I love my family and always have. I have always tried to show it in everything I do. Please help us we are very humble and greatful. Amen

That my family be protected and watched over and better times will come for us. Thank you!